In just 6 days, our little family will be participating in the LA Heart Walk once again. Last year we had so much fun and believe it or not, I was the top fundraiser for the event. This means only one thing – our friends, family and supporters are awesome. This year, I did not set…
Oh, hello January 7th. It’s you again. Every year you show up and gently remind me of something. You like to remind me of something that I nearly lost. You like to remind me to look around at what I have. Usually I wake up on January 7th feeling a bit melancholy. But this year…
You may have seen on Facebook that I’m participating in the Congenital Heart Walk taking place on here at Griffith Park on June 29th. I’ve never been involved in anything like this before, so I’m pretty excited to see what it’s all about. I’m part of the Hye Hearts Team and we are looking to raise…
Last night I was laying in bed, thinking about why it had been such a difficult day for Stevie. Was it because he started his new school? Was he mad at us for leaving him in an unknown place? Was he tired? Was he frustrated about something else that he couldn’t tell us about? Are…
It hit me a few days ago that it’s October. I know. A little late? But October is pretty significant in a couple ways, including another heartiversary. When he was 10 months old, back in 2011, that’s when Stevie had his 2nd open heart surgery to patch the hole in his heart and place a…
(image from the children’s primary hospital blog) This article was written by Molly Clark with the Social Security Administration. She emailed me and asked if I would share some info on SSA Disability Benefits for parents who have kids with Congenital Heart Defects. Stevie does not receive these benefits, but I feel like if there’s any…
This was a special day for me and Stevie. We not only got to go to Disneyland, but we got to be there with some of our favorite people. This is a family we met in the CTICU about 2 and 1/2 years ago. Our boys had open heart surgery just a day apart. Stevie…
February 14th. Halfway through the month! Near the beginning of Spring! Today marks the end of CHD Awareness Week, and a little “holiday” known as Valentine’s Day. It’s hard to ignore Valentine’s Day. As hard as you try. And trust me, I really do try. I’m just soooo not a fan. Probably because I eat…
February is full of hearts. Pink hearts, red hearts, candy hearts, chocolate hearts. But there’s another type of heart that plays an important part. Confirmed: I’ve been reading way too much Dr. Seuss. This post is not to show off my rhyming skills, but to remind you that February is Heart Health Awareness Month! CHD…
I consider myself to be someone who is pretty on top of things when it comes to my son’s health. After we found out about his heart defect, there wasn’t much of a choice. Lots of doctor appointments and medication prescriptions and blood tests will just automatically make you more aware. Except for one thing.…