If you read my last post, you could probably guess that I was dreading Stevie’s latest appointment with the cardiothoracic (heart) surgeon. This would be our first time seeing him in nearly 8 years, which is kind of amazing when you think about the rough start we had. But of course it was to discuss…
Oh dear Lord, what a day! Frankly, I’m glad it’s over and Stevie is heading to bed. I was so anxious leading up to this procedure, but as promised, game faces were ON this morning. We were all feeling ready to kick some ass. Well, some of us more than others. Once we got into…
Oh, hello January 7th. It’s you again. Every year you show up and gently remind me of something. You like to remind me of something that I nearly lost. You like to remind me to look around at what I have. Usually I wake up on January 7th feeling a bit melancholy. But this year…
You may have seen on Facebook that I’m participating in the Congenital Heart Walk taking place on here at Griffith Park on June 29th. I’ve never been involved in anything like this before, so I’m pretty excited to see what it’s all about. I’m part of the Hye Hearts Team and we are looking to raise…
February is full of hearts. Pink hearts, red hearts, candy hearts, chocolate hearts. But there’s another type of heart that plays an important part. Confirmed: I’ve been reading way too much Dr. Seuss. This post is not to show off my rhyming skills, but to remind you that February is Heart Health Awareness Month! CHD…
One year ago today, we were in a very different place. Children’s Hospital. My husband and I were on no sleep. And just waiting. Stephen was undergoing the 1st of his open heart surgeries. The day before, we had found out that he had a congenital heart defect and the doctors whisked him from my arms…
So last week, Stevie got his stitches out and had a good check-up. Then yesterday, we had the little guy’s follow up appointment with the Cardiologist and so far everything looks great! Everyone has been happy with the way his surgery turned out. His EKG looked fine. His saturations (oxygen levels) are at 98% (!!!)…
Today we were a little paranoid. But we’re ok with it. Better safe than sorry. Middle of the night, Stephen had a low grade fever of 100.2 and a little redness around one of his incisions (where chest tube #2 was). For the past 24 hours, he has been a horrible grump. Occasional crying and…
Oh my goodness. We are home. Four days after open heart surgery. I wasn’t anticipating it and I have mixed feelings about it. On one hand, it made me nervous taking him out of the hospital with fresh scars. We have to do things a little differently for awhile, like we cannot pick him up…
The “bad” isn’t so bad – it’s just barf. But sometimes it distracts us from the good. This morning he got a snagged stitch, which bled a little, and that set the tone for a crabby boy. He has been really congested as well, so they’ve been encouraging us to sit him up and get…