Update From The Hospital

This morning we had our normal Cardiology appointment to do his monthly EKG and Echo. I had also been waiting to hear from Children’s Hospital on when we would be coming in for Stephen’s procedure to clot the aneurysm. The cardiologist took a look at the lump and we all noticed immediately that it had grown. That was a bit concerning, so she called the doctor who would be doing the procedure and they sent us packing to the emergency room.

We were under the impression that it would be fairly quick and we would be home later tonight, so we headed over and just wanted to get it over with. But after about 3 hours of waiting and being told a bunch of different things, we realized we were going to be here awhile.

They finally started the procedure around 5pm and everything went fine. No surprises so far! The procedure was a little different than I expected too. They did sedate the little guy to keep him still for the injection, but they don’t actually clot his artery. The artery had a small leak and blood was collecting in that red lump, so they actually clotted that lump to close up the artery wall. And they wanted to do it quickly because it could be dangerous if left too long. Especially at the rate it was growing. So he won’t lose that artery like I originally thought. But the red lump will harden and eventually just be absorbed back into the body.

When we saw him after the Thrombolization, he was PISSED. Mostly because he hadn’t eaten in 8 hours!! And he was wrapped in a brace to keep him from moving his legs around too much.


I don’t think I’ll ever get used to seeing him with all these wires and beeping machines. It breaks my heart a little each time because I’m not comfortable with hospitals in general, and to see your sweet little baby like that is hard at first glance.

We will be spending the night here since they want to keep him for observation, which I was extremely disappointed about (add another year to my age!) All I can do is be grateful that things went well and look forward to getting out of here tomorrow. And try to have a good weekend with my little family and our friends. I can’t wait.

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One Comment
  1. Oh Jaana, my heart breaks for you! I know you have a lovely and wonderful support system, but still, you get so alone. It’s hard. I hope to hear that you’ll be home soon 🙂 and back to your ice cream treats. The things that push life forward. xx

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