Well, things have been going pretty good. But we have one little setback to report. Stephen will be going back under the knife again next week. 🙁 The last couple days, I have noticed a clicking sound coming from his insides. I imagined the worst thinking “Oh no, his sternum is probably coming unwired or…
Year: 2011
Home, Semi-Sweet Home
Yes, we made it! We finally got discharged from the hospital and came home. Although we were only there a little over a week and he’s come so far in such a short time, it felt like an eternity. I was really, really anxious to get out of there and Stevie wasn’t exactly cooperating. He…
No News is Good News
As long as everything keeps going the way it is, looks like we’ll be going home before the end of the week! I am nervous, but mostly just can’t wait. I am so ready to be out of the hospital. Since we moved up to the 6th Floor, I have been spending most of my…
The social network has sort of been my link to the outside world. Even though I can’t TALK on my cell phone in the hospital, I can text and go online so I do spend some time doing that every day. It has helped spread the word quickly about what’s been going on and its…
Movin' On Up
Well we made it up to the 6th Floor. It is a good thing for the most part because it means that Stevie is on the road to recovery! The only bummer about it is that now he doesn’t have his own full-time nurse catering to his every need 24 hours a day. The nurses…
One Week Down...
I can’t believe it’s been a week since Stevie’s diagnosis. Sometimes it feels like we’ve been at the Children’s Hospital for months. The days go by fairly quickly, but progress feels slow. Some days we see no improvements and its easy for a mother to get anxious because I want to see him well right…
Out Of My Hands
This song has been getting me through some of the rougher patches in the last few days… Out on my window ledgeI don’t feel safeAnd I stayLooking down on you It’s out of my hands for nowIt’s out of my hands for now I can’t just walk awayBe nice to walk awayBut I don’t feel…
Oh Baby!
This little man just wants to give us a run for our money. *SIGH* The last two days have been fairly uneventful, as he was just sedated and letting his little body recover from the traumatic surgery. But Stevie’s blood pressure was dropping every couple hours throughout the day. They kept bringing it back up…
Leaving Him...
Tonight, my husband and I decided we had to get some sleep. In our own bed. And I thought I’d be fine with that decision. Until 11pm rolled around and I actually had to leave my little boy’s side. I cried significantly less today as the newness of all this settles in. But as I…
32 Hours and Counting
Today has had some ups and downs. The first 24 hours since we found out about Stephen’s condition were a whirlwind. He was transferred to Children’s Hospital much quicker than anticipated and put right on the schedule for the surgery. We were so happy that things were moving quickly because that meant he would get…