(image from the children’s primary hospital blog) This article was written by Molly Clark with the Social Security Administration. She emailed me and asked if I would share some info on SSA Disability Benefits for parents who have kids with Congenital Heart Defects. Stevie does not receive these benefits, but I feel like if there’s any…
Most of our day at the Ventura County Fair looked like this: But there were a few glimmers of enjoyment in there too. From fire trucks to sheep with bangs to deep fried oreos. Stevie and I? We fight. We have fun. We fight. We have fun. Keeping up with a two year old’s roller…
Some thoughts on reality TV: Duck Dynasty – As much as I still love me some Jace and Uncle Si funnies, it’s just too staged. I can hardly get through an episode anymore. Reality is one thing, really bad acting is another. Real Housewives of OC – Less Gretchen and Slade, more Heather and champs…
This was a special day for me and Stevie. We not only got to go to Disneyland, but we got to be there with some of our favorite people. This is a family we met in the CTICU about 2 and 1/2 years ago. Our boys had open heart surgery just a day apart. Stevie…
This dressing makes the salad. So yummy – sweet, tart, bacon – and easy as pie. Probably much easier than pie actually. I’ve never even tried making pie. Maybe someday. Probably not. Never mind the fact that as I blog about this yummy salad, I am, in fact, eating a plain turkey sandwich on a paper…
With all the therapy that Stevie is getting, sometimes it’s hard not to get frustrated and impatient when progress doesn’t happen as quickly as you think it should. A couple months ago, I wrote a post about how tough it is to see his low scores over and over. But the thing you I have to…
Our last day in New York City was bitter sweet. Paul was anxious to get home. And I wanted to stay just one more day. Or ten. We took it easy for the most part. Hailed a reallllly smelly cab to the Brooklyn Bridge and met up for lunch with one of Paul’s childhood friends…
Last time Paul and I went to New York, the 9/11 Memorial didn’t exist. It was still Ground Zero. With construction fences and an eerie feeling all around it. Certainly not much to look at. It’s amazing what they’ve done in the last 5 years. I think the design is smart. It’s calming and heartbreaking.…
OK, it was actually called Camp Nubar. But if you imagine a bald, mustached Moroccan with a thick French accent yelling out “Camp Magoooo!!” every so often, it’s so much more funny. Pretty place, lots of rain, nice lake, especially loved when the huz showed me around and shared some of his childhood memories. I could…
Traveling with so many people, there were only a handful of times where we all wanted to do the same thing and could get our schedules to match. One of those times was in Central Park. I get a little smitten with the view from Central Park. Just all that beautiful cheerful green surrounded by…