My husband and I don’t celebrate Valentine’s Day. We don’t need to. Once you’ve left the 6th Grade, what’s the point of it, really? Regardless of my feelings toward V-Day (sounds like a disease to me), I had to show off some of my lovin’ for this cute bugga boy. I’ll celebrate for this little…
Tag: heart baby
1 Year Later
One year ago today, we were in a very different place. Children’s Hospital. My husband and I were on no sleep. And just waiting. Stephen was undergoing the 1st of his open heart surgeries. The day before, we had found out that he had a congenital heart defect and the doctors whisked him from my arms…
Post-Ops
So last week, Stevie got his stitches out and had a good check-up. Then yesterday, we had the little guy’s follow up appointment with the Cardiologist and so far everything looks great! Everyone has been happy with the way his surgery turned out. His EKG looked fine. His saturations (oxygen levels) are at 98% (!!!)…
Paranoia
Today we were a little paranoid. But we’re ok with it. Better safe than sorry. Middle of the night, Stephen had a low grade fever of 100.2 and a little redness around one of his incisions (where chest tube #2 was). For the past 24 hours, he has been a horrible grump. Occasional crying and…
Home
Oh my goodness. We are home. Four days after open heart surgery. I wasn’t anticipating it and I have mixed feelings about it. On one hand, it made me nervous taking him out of the hospital with fresh scars. We have to do things a little differently for awhile, like we cannot pick him up…
Good and Bad
The “bad” isn’t so bad – it’s just barf. But sometimes it distracts us from the good. This morning he got a snagged stitch, which bled a little, and that set the tone for a crabby boy. He has been really congested as well, so they’ve been encouraging us to sit him up and get…
Progress
Stephen is making good progress all the time. He is off all the medications, just gets a quick shot of a couple things as needed (like pain meds). They took out almost all his wires and needles, just has one line in the groin- for those quick shots – and the chest tube for draining,…
Open Heart Surgery #2
Stephen had his second open heart surgery early this morning. It was a success, according to our amazing surgeon. We are so glad that he is safe and has a healthy working heart. This morning came much too soon for my liking. We were out of bed at 4:30am and headed to the hospital around…
Bravery
Most days are good. I want to preface this by saying that. But knowing that my itty-bitty baby is having open heart surgery in just a couple of weeks is very anxiety inducing for me. I’ve had a few rough days this month. Where I just can’t stop crying and I’m scared. My emotions are…
Cath Lab Results
Cath Lab, Cardio Cath, Heart Catheterization, Angioplasty, Angiogram. It has many names, but it’s all basically the same from what I can tell. Anyway, the results came back as expected. The wee one’s heart kind of looks like this: I found a diagram of a heart online and just sort of filled in the blanks.…