Oh my gosh. Today was not a good day. At least, not until after 2pm. Stevie is fine, it was just rough overall. The little guy had a doctor’s appointment with Hematology/Oncology. They wanted to do blood work to make sure that he doesn’t have a clotting disorder. When he clotted the original shunt that they…
Category: Stevie Fan Club
Birth Story
I never did get to share my birth story, since so much happened in the few weeks after Stevie was born. Luckily mine is short and sweet… On December 20th, in the middle of the night, I started having labor pains. They lasted about 4 hours and then at 6am, they would suddenly just stop.…
YAY!
Just wanted to update real quick that we got some awesome news today. Stephen does not need the second procedure done to re-wire his sternum! Not for now anyway. We took him in for his pre-op appointment and before they got all his blood drawn and consent forms signed, I mentioned that I hadn’t heard…
Heart Doctor
Today the baby had his first appointment with the Cardiologist. She is someone who will be in his life for a long time, as he will always need someone checking on his heart. Luckily we love the doctors in that office and we have only good news to report! They first weighed and measured him…
Oh, bugger...
Well, things have been going pretty good. But we have one little setback to report. Stephen will be going back under the knife again next week. 🙁 The last couple days, I have noticed a clicking sound coming from his insides. I imagined the worst thinking “Oh no, his sternum is probably coming unwired or…
Home, Semi-Sweet Home
Yes, we made it! We finally got discharged from the hospital and came home. Although we were only there a little over a week and he’s come so far in such a short time, it felt like an eternity. I was really, really anxious to get out of there and Stevie wasn’t exactly cooperating. He…
No News is Good News
As long as everything keeps going the way it is, looks like we’ll be going home before the end of the week! I am nervous, but mostly just can’t wait. I am so ready to be out of the hospital. Since we moved up to the 6th Floor, I have been spending most of my…
The social network has sort of been my link to the outside world. Even though I can’t TALK on my cell phone in the hospital, I can text and go online so I do spend some time doing that every day. It has helped spread the word quickly about what’s been going on and its…
Movin' On Up
Well we made it up to the 6th Floor. It is a good thing for the most part because it means that Stevie is on the road to recovery! The only bummer about it is that now he doesn’t have his own full-time nurse catering to his every need 24 hours a day. The nurses…
One Week Down...
I can’t believe it’s been a week since Stevie’s diagnosis. Sometimes it feels like we’ve been at the Children’s Hospital for months. The days go by fairly quickly, but progress feels slow. Some days we see no improvements and its easy for a mother to get anxious because I want to see him well right…